Collaboration for Good Practices with Patients WG

Chairperson

Dominique de Valeriola

The OECI Working Group “Collaboration for Good Practices with Patients” (CGPP) has been set up to solve recurrent challenges, shared by cancer centres, related to cancer care and research, through dedicated, new patient-focused initiatives. “Improving participation in clinical trials”, “Helping patients by educating and supporting his/her relatives”, “Survivorship” and “Improving the patient care pathways” will be addressed in a spirit of shared partnership between OECI cancer centres, patient organisations and relevant stakeholders.
The mission of the Working Group is to collect, analyse & disseminate successful, patient-oriented collaborative practices in cancer care and research; a “fact-tank” providing a supportive task force for OECI cancer centres that need methodological tools and expertise to implement new initiatives.
By stimulating OECI centres to share their experiences of collaboration, the WG aims at grasping the diversity of the solutions implemented in specific contexts; and this library of “cases” will serve as a dynamic source of inspiration for cancer centres.
As cancer centres currently show an increasing demand for guidance and support in better involvement of patients in care and research activities, a strong collaborative foundation has already been sealed with the largest European Cancer Patient organisation ECPC (European Cancer Patient Coalition) through a Memorandum Of Understanding and a Joint Declaration.
Initiated on the basis of this collaboration, the CGPP will focus on developing methodological tools to promote its objectives. The first one being to provide a framework to better develop practices, which are recognized as: “good practices” by cancer centres and patients. >

Embedding the cancer patient voice May 2021

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